You guys! YOU GUYS!! I am ecstatic to bring you this update from Paige on her awesome kid, Davis. I am blown away by the hope and real answers that the National Jewish Hospital's Atopic Dermatitis program provides. And well...it just might be me and Paige's new dream project to help as many kids get to them as we can. In that spirit, please go back and read about Titus who, like Davis did, needs to get to Denver. Titus is a baby living with severe atopic dermatitis and we are currently trying to raise enough money to send him to Denver for the help he deserves. Please consider giving a few dollars to help him get there. Then all you need to do is read the guest post below from Paige to see that this program is a miracle. This program is second to none. This program is hope. Please give today.
If you are here for the first time because you are looking for stories on healing atopic dermatitis, click here to read all of the posts in this series.
xoxo, Mama Pants
Two months we've been home and I still catch myself staring at him in wonder. Is this really the same child? Is his skin really that soft and clear? Has he really been sitting there since he got home from school, playing with his hot wheels without me having to redirect, fix his clothes, hold his hands, pat his itchy spots, apply lotion, and debate with myself for the millionth time whether to give him Benadryl?
It really is him. But he’s not the same child, not by a long shot. This kid is FULL of energy from a full night’s sleep almost every night. This kid isn't groggy from antihistamines. This kid looks people, even strangers, in the eye and smiles without a trace of self-consciousness. This kid will freaking throw down for an Oreo.
In all seriousness though, the difference is more than I could ever really describe. Every facet of our lives has changed, from the foods we eat to the activities we participate in and everything in between. We've incorporated the soak and seal baths into a relaxing bedtime routine and, for the most part, it’s become effortless; or at least, closer to effortless than laying in his bed restraining him until he falls into a fitful sleep. And the holidays this year…I can’t even begin to tell you how amazing it was to be able to make gingerbread houses with him and let him eat almost all the same foods as everyone else at the family get-togethers.
My little man is going to turn five in a month. Next fall he’ll start Kindergarten. And while I know I’ll never forget the difficulties we've faced, it is amazing to me to think that one day I’ll look back on those struggles and truly understand what a short time in his life it was. His eczema will NOT define him as a person. It will not shape his personality and affect every aspect of his interactions with people. It will simply be something he learns to manage, now that I know how to teach him to manage it.
It feels like so much longer than four months since that day in September when he told me he wished he could have a different body. There is no possible way I could have imagined that by Thanksgiving his wish would have darn near come true. Looking back I can see that I’d honestly stopped hoping things would ever really change for him and it was his words that day that woke me up and reminded me I had to keep trying.
It doesn't do any good to wish we’d done it sooner, though of course I do. I think of all those nights he (um…okay WE) could have been sleeping and those days he could have been playing like a normal kid and I just have to tell myself that it happened when it was supposed to happen. But you better believe I’ll be out there shouting from the metaphorical rooftops of the internet in the hopes that other parents of kids like Davis will hear: THERE ARE PEOPLE THAT CAN HELP. It IS possible. You CAN make it happen. Do it NOW so you don’t ever have to wish you’d done it sooner. And if you take nothing else from our story, take this: Don’t ever stop hoping.
I'm Paige. I have two incredible children who blow my mind daily, one of whom I write about here. This is the story of our journey to find him a better life.