She called...and emailed me the report. And oh man, it's good news. We have a long road ahead for sure (I'll explain in a bit) but for now (and hopefully forever) autism is off the mother effing table!!!! At least for the next year to eighteen months. If you could only see my enormous and ridiculous grin. It hurts my face. When I talked with her over the phone she indicated that she didn't get "an autism feel" from Mr. Pants. And that in her opinion, Mr Pants has a severe speech and language disorder that is affecting his congnitive development. She acknowledged his sensory issues and believe they are playing into it as well. And his repetitive behaviors put him at risk for OCD. All of those together, she believes, are creating the other behaviors that are presenting concerns similair to kids on the autism spectrum. Two things are keeping him from receiving a diagnosis of autism. Those two things are eye contact and reciprocal social behaviors (ie: he totally shows love, gives love and desires love. And all of those other emotions too like happiness, sadness, anger and excitement). He tested within the spectrum for three of the five catagories but WAY off the spectrum for those two and because they need to be on the spectrum for all five catagories, autism has been ruled out. For now.  The year between two and three is critical though and we will need to be mindful of his  progress and skill aquisition. We need to be sure he isn't losing skills after he masters them. That would be bad and we would need to have him re-evaulated sooner should that happen. BUT (and it's an enormous BUT), Doc doesn't think that will be an issue with him. She really doesn't. And oh my good gravy it is making me insane with excitement! See my biggest fear for my baby boy was that he would be ostracized by his peers for being unable to connect socially. That he would be treated differently. Cruelly. For something that he could not help or understand. And while I know this could always still happen, I am so effing grateful that it won't be because he can not make friends. And that if it does happen to him, he will be able to communicate his feelings and accept support and help. He doesn't have to be popular or even involved in school activities. That stuff will never matter to me. My wish for him is that he will be able to grow a relationship with his baby sister, make a friend at school and someday find an emotional connection in a partnership with whomever he loves. And oh boy, the tears are flowing as I write this. All signs point to he will be able to (HELL YES!). I'm a happy mess. 
 
So now we have to ramp up the therapy. It's time to kick it up several notches. He is communicating below the first percentile for kids his age. And that's just about as bad as it can get for a kid without autism. We need to help his growing brain make more connections and keep them and place all of our efforts on developing his expressive and receptive communcation. And this doesn't mean just words or speaking English. This means all of the facets of communication. Speaking, relaying ideas, understanding concepts, distinguishing between objects and understanding nuance. We have some work to do! Hopefully as his ability to communicate grows, his stress responses (the OCD stuff: opening & closing, tuning out, patterns etc) will diminish. Fingers crossed. He seems to be dealing very well with his vestibular and other sensory issues (but I totally knew that). Something that stood out is that they believe that his vision is affected somehow. So that's on the list of things to get evaluated now too. Wouldn't I feel like an asshat if he's needed glasses this whole time? Aaaaaand, my brain hurts. It's a lot to take in, because my mama heart stops at "not autism" and swoons. But we have work to do. And I have no doubt that Mr. Pants is up for this challange. And his mama and daddy will be right there cheering him on. But for today and the next few days, I'm just gonna play and snuggle with my boy. Who I am so proud of.  And it never mattered what was coming in the report, no amount of anything was gonna change that. 

Since we began this journey that lil dude is on, I have received so many contacts and messages of encouragement . So I want to thank everyone who is rooting for my boy. Thank you so so so much. He is a wild little guy who is funny and exceptional. And it makes my heart swoon that others see his light too.  
 


Comments

Jess
10/26/2011 12:56

Ohhhh Mama Pants, my tears are flowing for you and the rest of the pants family! I am stuck on the "not autism" part, too!! I know there is a lot of work to be done, but let's just cling to the "not autism" part for right now. Yyyyyaaaaaaaaaaayyyyy!!! Sending you the biggest hugs right now (wish I could give them in person)!! I can feel your joy in every word of your post. Love to you!!!

Reply
D's Mom
10/26/2011 13:12

Crying with you too. The words "not autism" sound pretty darn amazing and you have almost inspired me to do all this with D so I can hear them too (but I am still too frightened that we will hear the opposite). Your biggest fear is my biggest fear. So my tears are happy tears for you from someone who really understands.

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Laura
10/26/2011 13:18

I could not be happier to read this post!!! So happy for you guys!!

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Robin C
10/26/2011 13:24

What awesome news! So, so happy for you and Mr Pants!!

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Lisa
10/26/2011 13:59

I am happy for you guys. This is pretty much what happened with us and Colby, they said not autistic (for now!) just huge speech delay. Now do you have to take S to have his vision checked? What is the follow up for that? Congrats again momma, raising little people isn't easy especially these little silent ones. :)

Reply
10/26/2011 14:05

WONDERFUL. I am thrilled to read this news! Your biggest is fear is shared by us. So happy that there is a good plan of action in place; I bet that makes you feel good too.

Reply
Jennifer
10/26/2011 14:11

Colleen, you are an amazing mom and would be able to deal with the outcome no matter what it would have been :) But, of course it is a sigh of relief for the little guy not having the diagnosis because as unfortunate as it is, other kids can be cruel :(. Mr Pants and the rest of the family definately has plenty of love and strength to pull through this!!!

Reply
Lisa
10/26/2011 14:41

YAAAAAAAAAAAAYYYYYYYYY!!! and a bazillion WOOHOOOOOS!!
this is spectacular news. i am looking ahead and am sure that in ten years time i will be reading a post from you wondering if your tween mr. pants will ever stop talking, because he WILL get there. i am rooting for him. and.....you are a super fabulous momma, just in case you don't know it. ;)

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Jennifer
10/26/2011 15:04

Awesome to hear your news!

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Buff
10/26/2011 15:13

That is wonderful news!! So happy for you guys!!

Reply
10/26/2011 15:38

Oh, what a relief. Big hugs all around!! You can do this, Mr. Pants!! And you too, Mama!!

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Grandma pants
10/26/2011 15:48

haaaalayluyah.
Haaaaaalayluyah
Hale Uua hake Uua haaaalayyluyah!!!

Reply
Kendra
10/26/2011 20:59

Tears..again.

One thing I didnt know was to take kids to a pediatric eye doctor.we took s to pearl vision and that may have been a mistake. I met one at ach who was very nice. Can't remember his name...

Reply
Mama Pants
10/26/2011 21:25

Thank you everyone! Thank you for rooting for us! We are so blessed.

Lisa, I will have to find a pediatric eye doctor (thanks Kendra for that advice!). I'm sure that day will be interesting ;)

JoEllen and D's Mom, I'm giving you hugs through the internet right now.

Grandma Pants, is that the hallelujah chorus is Pantsinese? lol

Reply
Anna
10/29/2011 02:39

Oh Colleen, I'm so relieved and happy for you mama! *hugs* Go Silas!

Reply
09/10/2012 23:54

I'll try to follow Mr. Pants' journey :) My kids are both on the spectrum (Asperger's Syndrome) and one of the reasons it took until about age five to diagnose them is that they are both such LOVING kids. It took awhile for them to trip the scales in the other direction. Instead of lacking in empathy, my daughter has too much of it. (The testing person stepped on an ant, no lie, and it was half an hour to calm her down.) I think it's awesome that you're doing everything your dude needs, no matter whether he is diagnosed with autism at some point in the future or not.

Reply



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